Getting Help

There are many times when we feel that this is one hell of an uphill struggle. Bringing up an autistic child has been a challenge for us, and we only have one. Our two 'normal' sons often cause more problems. There are many times when we face so much heartache, and depression becomes a factor that we really must reach out and look for some help.

There is a certain Britishness about us, that is really counter-productive and even bordering on harmful to our children. We like to fend for ourselves and see the concept of seeking outside help as some kind of weakness. This is so wrong. There are a number of highly dedicated and very skilled voluntary organisations that are reaching out to help with advice, information and even financial assistance

National Autistic Society

The National Autistic Society exists to champion the rights and interests of all people with autism and to ensure that they and their families receive quality services appropriate to their needs.

Helpline 0845 070 4004 e-mail autismhelpline@nas.org.uk Web Site www.nas.org.uk

Contact a Family

Every day over 75 children in the UK are born or diagnosed with a serious disability or rare syndrome and the vast majority of them are cared for at home. Contact a Family is the only UK charity providing support and advice to parents whatever the medical condition of their child.

Helpline 0808 808 3555 e-mail: info@cafamily.org.uk Web Site www.cafamily.org.uk

The Family Fund

We champion an inclusive society where families with severely disabled or seriously ill children have choices and the opportunity to enjoy ordinary life. We give grants and information related to the care of the child. The range of grants includes holidays, leisure, laundry equipment, driving lessons and lots more. Our office is open Monday to Friday between 9am and 5pm. Our phone lines are very busy and we advise that you contact us by email where possible.

Tel 0845 130 45 42 e-mail: info@familyfund.org.uk Web Site www.familyfundtrust.org.uk

After 16 – what’s new?

Choices and challenges for young disabled people

This website is for:

• Teenagers and young people in the UK who have an impairment or disability and are wondering what opportunities and services there should be when they leave school.
• Parents, carers and professional workers will probably want to use it too!
  After 16 – what’s new? is for people with a wide range of abilities and disabilities, so not all of it may apply to you. You will find the information in boxes especially useful, even if you decide to skip some of the rest!

Website: http://www.after16.org.uk/

This page will be updates as more information becomes available. Last updated Feb 13th 2005.